Families Cannot Be Caregivers Forever Garnering Attention

Families Cannot Be Caregivers Forever Garnering Attention 

All your letters, editorials, stories, and media interviews are paying off! The “Families Cannot Be Caregivers Forever” campaign has caught the attention of policymakers. NYSARC is meeting with members of the Legislature and the Governor’s staff to highlight the critical importance of providing supports to aging parents caring for their adult child with developmental disabilities at home.

But our work is far from done…

On Thursday, Feb. 26 at 1 pm, NYSARC will hold a press conference in Albany asking the Legislature and the Governor to designate $30 million to fund an additional 3,500 opportunities for people living at home in need of supports or out-of-home residential care. At the press event, families from across the state, joined by NYSARC leaders, will share their personal stories.

In addition to the press conference, NYSARC Chapters have recorded and posted compelling video testimonials with aging parents sharing their concerns. One particular video has generated more than 10,000 views and 100 shares. To watch these videos, visit NYSARC’s Facebook page.

After watching these videos, visit the “Families Cannot Be Caregivers Forever” website at take action. Click here to visit the website. Send an editable message to your legislator or to the Governor. Sign a petition to the Governor or share your story. Finally, view links to newspaper editorials, letters to the editor, and feature articles from across the state.

To date, more than 1,900 emails and petitions have been sent to the Governor and legislators. We’ve accomplished a crucial step in gaining the administration’s attention. But we still have a long way to go toward accomplishing our goal. Keep urging everyone you know to participate in the campaign … and proclaiming that “Families Cannot Be Caregivers Forever.”

Schenectady ARC Headed to State Capitol for Legislative Visit

Schenectady ARC will join NYSACRA and NYSRA as they host their annual Legislative Event on Monday and Tuesday, February 9th and 10th in the Hart Lounge of The Egg at the Empire State Plaza in Albany.  The day and a half event will highlight panel discussions on managed care as well as employment for people with disabilities as well as a briefing on the 2015-16 Executive Budget proposal.  Deputy Secretary for Health, Courtney Burke, will kick off the 2015 Legislative Event.  NYSACRA and NYSRA encourage you to come to Albany on February 9th and 10th to hear from State Legislators and key state officials on the issues important to agencies, direct support professionals, people with disabilities and family members.

To register, go to: http://events.r20.constantcontact.com/register/event?oeidk=a07ea6jo6f8e203a849&llr=hmdybgfab

Governor’s Employment First Commission Seeks Public Comment – Hosting Listening Sessions

On September 17, 2014, Governor Andrew Cuomo issued Executive Order #136 (http://www.governor.ny.gov/sites/governor.ny.gov/files/archive/governor_files/documents/EmploymentFirstCommissionExecutiveOrder.pdf) establishing the New York Employment First Initiative to Increase Employment of New Yorkers with Disabilities.  Through EO 136, the Employment First Commissioner was created.  The Governor’s Office is seeking public comment to assist the Employment First Commission with creating an Employment First Policy for New York.  Interested individuals may submit comments and suggestions to the Commission via the email address: employmentfirst@exec,ny.gov

Two listening sessions have been scheduled and individuals may present oral testimony to the Commission.  The first session will be held on January 29th from 3PM – 5PM in New York City (location to be announced).  The second session will be held on February 2nd from 1PM – 3PM in Albany (location to be announced).  For more information, go to:  http://programs.governor.ny.gov/olmstead/home

The Commission seeks input in the following areas:  policies and procedures to eliminate barriers or disincentives for the employment of individuals with disabilities, strategies to maximize opportunities to hire individuals with disabilities, creating more opportunities for students with disabilities transitioning from educational settings to competitive integrated employment as the first option, or any other matter you believe to be important to the Commission’s purpose.

Families Cannot Be Caregivers Forever campaign update

Thanks to everyone who has forwarded us links to letters to the editor and editorials as part of the Families Cannot Be Caregivers Forever campaign. Keep those letters and editorials coming so we can gather a HUGE stack to show to the Governor and our elected officials in Albany.


In the meantime, below are some links to read and share via your respective social media sites:


Editorial: Help for those with disabilities (The Daily News)



Letter: Cuomo needs to restore funding to help disabled (The Buffalo News)



Criticizes Cuomo’s position on those with developmental disabilities (Niagara-Wheatfield Tribune)



Wanted: More group homes (Utica Observer-Dispatch)



Families cannot be caregivers forever (Utica Observer-Dispatch)




On November 21st the Governor vetoed four bills representing critical issues to people with developmental disabilities and their families. The vetoes were a disappointment but they represent a beginning rather than an ending. With the Governor’s budget proposal due at the end of next month, the vetoes represent an opportunity. We need to reach out to the media, the public and, most importantly, to the Legislature and the Governor. They need to address the exploding crisis faced by families because New York State has effectively stopped developing new supports and services for people with developmental disabilities who are living at home with aging family members.

Mobilize your families to send letters to the Governor,

State Senator and Assemblymember NOW!


· Family members must urge their State Senator and Assemblymember to let the Governor know that it is important to their constituents that additional funding for critically needed residential and day supports and services be included in his 2015-2016 Executive Budget.

· Let Governor Cuomo know that there is an exploding crisis. Many families are desperate for day and/or residential supports and services for their loved ones with developmental disabilities.

· Urge Governor Cuomo to include additional funding for these supports and services in his Executive Budget.

Legislators need to hear from their constituents NOW!

They must be reminded that the Governor vetoed four bills that were passed by the legislature without a single negative vote. Family members must tell them that they expect them to continue to support the key issue these bills represent. They need to reach out to the Governor and their leaders and advocate for a budget that addresses supports and services for people living at home. A sample message for legislators is attached and will be posted on the new Engage Action Alert tool on the NYSARC website.

The link below will allow family members, advocates and professionals to send the letters directly from the site to the Governor and their Assemblymember and Senator. They can also sign a petition and share their stories. Talking points and other background material is also available and may be helpful to those who want to write their own letters.

Finally a sample letter to the editor is available. Local press contact whether by letter, editorial or news story is extremely important.

Click http://cqrcengage.com/nysarc/Hom to send emails to the Governor, your Senator and Assemblymember.

Remember to click the link and sign the petition to Governor Cuomo!

We need to start influencing the Governor’s budget proposal – now expected out about January 27th – and to continue influencing the budget until it is passed.

Action requested: Integrated Employment/safety net bill (A8873/S6640)

From: Ben Golden
> Sent: Friday, March 21, 2014 9:58 AM
> To: Executive Directors
> Cc: John Kemmer; Marc Brandt
> Subject: Action requested: Integrated Employment/safety net bill (A8873/S6640)
> TO: Chapters concerned with workshops, especially chapters with Assembly Democrats
> NYSARC initiated legislation to create an array of integrated employment options with tax credits and key transportation reforms.
> Under Senator Cathy Young’s leadership, the Senate is advancing almost the entire bill as part of the final state budget. So far the Assembly is not doing that. The final bill is now being negotiated.
> Chapters interested in this initiative should call their Assemblyperson, especially Assembly Democrats, and ask their Assemblyperson to contact Assembly Mental Health Chair Aileen Gunther. Have them tell Gunther to make sure that the Assembly concurs with the Senate and includes the provisions of the bill in the final budget.
> Assemblywoman Gunther should be interested in doing this since she is the Assembly co-sponsor. Have your Assemblyperson remind her of that. The bill numbers are S6640 by Senator Young and A8873 by Gunther.
> Any questions, please call.
> Thanks
> Ben Golden
> Director of Governmental Affairs
> NYSARC, Inc.
> 393 Delaware Ave., Delmar, NY
> 12054
> 518-439-8311

Thank the Legislators

Write to your legislator — Thank them for their help in stopping cuts to the OPWDD Budget

Dear Friends,

This week both the Senate and Assembly passed resolutions to include the restoration of funds to the OPWDD Budget this includes $120 million in state funds preventing a reduction for the budgets of private, not for profit providers like Schenectady ARC.

Schenectady ARC, is asking that you thank your legislator for their action. However, the fight for funding is not over. This resolution merely means that both the Senate and Assembly have heard our justification for the restoration of funds. We still need to persuade the Governor of the importance of these funds and the impact the cuts will have.

We thank you for your continued advocacy and support and please share your gratitude with your legislator for the support they have shown.

Senator Hugh T. Farley
188 State Street
Room 711, Legislative Office Building
Albany, NY 12247
Phone: (518) 455-2181
Fax: (518) 455-2271
Senator Cecilia Tkaczyk
311 Legislative Office Building
Empire State Plaza
Albany, NY 12247
Phone: 518-455-2470
Assemblyman Angelo Santabarbara
LOB 833
Albany, NY 12248
Assemblymember Phil Steck
LOB 819
Albany, NY 12248
Assemblyman James N. Tedisco
LOB 404
Albany, NY 12248

Time is of the essence. April 1 is the scheduled date for the budget to be passed.